I Must Not Mis-Spell My Medicine (includes information on dermapsychology which may be useful for psoriasis sufferers).
Guess what I’ve just been spending the past hour doing? Going thorugh my blog archive and correcting the spelling of the two oral treatments I am taking. What joy. I had assumed they were spelt “cyclosprine” and “acetretine” and only an idle moment today spent reading the packaging of the medicine I have been swallowing by the bucktleoad for the past God-knows-how-long revealed that my orthographical assumptions have been malfunctioning with the same waywardness as Kelvin McKenzie’s moral compass.
So, for the record, I am on ciclosporin (pronounced sy-clo-spor-in), do you hear me? And acitretin. Ciclosporin, ciclosporin, ciclosporin. Acitretin, acitretin, acitretin. There, hopefully that will redress the cyberspace balance of my consistent cack-headedness (though to be fair, the internet rather presumptuously asks you if you mean “cyclosporine” when you type “ciclosporin” into Google, so I’m not alone – all the web in the whole wide world makes the same mistake that I did). That said, even I don’t know if this blog is called “Shedding Light AND Skin” or “Shedding Light ON Skin”. I am not particularly enamoured of either to be honest, and might just call it plain old Psoriasis Blog from now on (I’m probably typing this for my benefit only as I suspect the rest of you simply couldn’t give a toss what it’s called).
If you want to know what ciclosporin is by the way, have a look here. Like many a psoriasis treatment it was initially used for something else (in this case, kidney transplants) and by chance it proved to have a positive side effect on this beastly malady. Hopefully one day they’ll stumble upon the fact that people who consume industrial levels of champagne and Lindt chocolate show an upturn in their battle against the psoriatic ague and so Verve Cliquot and Dark Intense become prescribed on the NHS. Why not? Stranger things have happened.
I went to see Doctor Mazara today, who was keen for me to alert my … ooh, dozens of readers (unless that’s just you clicking on to the site twelve times Mum, in which case, stop it!) to the work she does at the Royal Free. She is, as I have mentioned, a dermapsychologist, who is available on the NHS for anyone who thinks that dealing with the psychological ramifications of their psoriasis might be a useful way of combatting it. She has certainly been helping me, and this initiative to encourage people to treat the disease as not just an afflictiom of the skin, but rather something that is inextricably linked with one’s emotional state, is certainly worth a shot.
There is more information, some contact details and FAQs here (PDF), and some basic info here. In my experience, GPs are happy for psoriasis patients to come in with suggestions because it is such a complex and specialised disease. If you don’t ask you don’t get, so why not give it a bash? You have nothing to lose but your pains.